Published: April 24, 2024
Céline Dion Leans on ‘Love of My Family’ as She Navigates Stiff-Person Syndrome
By Movieguide® Contributor
Céline Dion is relying on the love of her family and friends as she continues to navigate life with stiff-person syndrome.
When asked what helps her the most as she handles her condition, Dion replied, “Above all, the love of my family and my children, and the love of the fans too, and the support of my team.”
“People who suffer from SPS may not be lucky enough or have the means to have good doctors and good treatments. I have the means, this is a gift,” she continued.
A source previously told PEOPLE that her sons —René-Charles, 23, and twins Nelson and Eddy, 13 — are “her light.”
“Her main focuses are always her sons and performing. She is the most selfless and considerate person,” the source explained. “Céline just loves her boys so much. They are amazing. They give her all the support and love that she needs.”
Dion also spoke about life with stiff person syndrome, saying, “I haven’t beat the disease, as it’s still within me and always will be. I hope that we’ll find a miracle, a way to cure it with scientific research, but for now I have to learn to live with it.”
“Life doesn’t give you any answers,” she continued. “You just have to live it! I have this illness for some unknown reason. The way I see it, I have two choices. Either I train like an athlete and work super hard, or I switch off and it’s over, I stay at home, listen to my songs, stand in front of my mirror and sing to myself.”
Dion said it’s “morally hard to live from day to day” with SPS, adding, “I’m working very hard and tomorrow will be even harder. Tomorrow is another day. But there’s one thing that will never stop, and that’s the will. It’s the passion. It’s the dream. It’s determination.”
Movieguide® previously reported on Dion’s diagnosis and her efforts to overcome SPS:
Grammy Award winner Celine Dion’s sister, Claudette Dion, has updated fans about the singer’s stiff-person syndrome diagnosis.
“She’s doing everything to recover. She’s a strong woman,” Claudette told HELLO! Canada.
“It’s an illness we know so little about. There are spasms — they’re impossible to control. You know people often jump up in the night because of a cramp in the leg or the calf? It’s a bit like that, but in all muscles,” she continued.
“There’s little we can do to support her, to alleviate her pain,” she added with sadness.
But Claudette is hopeful that researchers and experts will be able to find a cure for her sister.
“We’re crossing our fingers that researchers will find a remedy for this awful illness,” she stated.
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Now more than ever we’re bombarded by darkness in media, movies, and TV. Movieguide® has fought back for almost 40 years, working within Hollywood to propel uplifting and positive content. We’re proud to say we’ve collaborated with some of the top industry players to influence and redeem entertainment for Jesus. Still, the most influential person in Hollywood is you. The viewer.
What you listen to, watch, and read has power. Movieguide® wants to give you the resources to empower the good and the beautiful. But we can’t do it alone. We need your support.
You can make a difference with as little as $7. It takes only a moment. If you can, consider supporting our ministry with a monthly gift. Thank you.
Movieguide® is a 501c3 and all donations are tax deductible.
